Matt Day, the co-director, kneeling to film a running race at the World Games.

 

The Team.

 

All You Hear Is Noise is being produced by a team that includes the film’s directors, the main subjects, and a group of advisors from the community of people with intellectual disabilities.

“Nothing about us without us” is a slogan that was made popular by disability rights activists to explain the importance of including people with disabilities in the decision-making process for policies that impact them.

We believe the slogan should be a rule for storytelling as well. The film is being produced with a diverse group of stakeholders from the community of people with intellectual disabilities.

Kate Bove

Advisor, Vermont

 

Pat Diskin

Subject, Massachusetts

 

Nicole LeBlanc

Advisor, Maryland

Max Barrows

Advisor, Vermont

 

Trent Hampton

Subject, New York

 

Andrew Pulrang

Consultant, New York

Ned Castle

Co-Director, New York

 

Melanie Holmes

Subject, Wyoming

 

Saul Simon MacWilliams

Composer, California

Matt Day

Co-Director, California

 

Tatiana Lee

Advisor, RespectAbility, California

 

Jessica Salmond

Advisor, Maryland

Daniel Smrokowski

Advisor, Illinois

Chris Wines

Subject, New Jersey

 

**Full team member biographies and organizational affiliations are listed below.

 

A Message from Kate.

Kate Bove is an advocate and has competed in two World Games and one U.S. Games. The directors’ met with her in the early stages of the film-making process to discuss the idea of making a documentary about the Special Olympics World Games. The one minute clip below is Kate sharing her thoughts about how a film could support the conversation around disability in our society today.

 
 

Closed Captioning can be turned on by clicking the CC logo in the player options bar.

Film Subjects

 
untitled-106-2.jpg

Trent Hampton

At age forty, Trent has spent the majority of his life within driving distance of his childhood home on Long Island. He points to bullying in his adolescence as the catalyst for a volatile temper that he has worked hard to understand and reign in. As a testament to this personal growth, Trent demonstrates genuine affection and concern toward his new teammates, competitors, and young fans. This generous demeanor belies a deeper intensity—glimpsed in moments of travel stress or athletic competition—that is a defining quality of this complex, imperfect, human character.

 
untitled-119.jpg

Melanie Holmes

Melanie Holmes is a 23 year-old triathlete from Pinedale, Wyoming. Initial shyness around Trent and Chris gives way to an underlying joviality, as she affectionately dubs Chris "Nemo” (after the film “Finding Nemo”) in response to his wandering tendency, or holds her own in a protracted burping contest with Trent. What Melanie lacks in innate athleticism she makes up for in dogged determination. Her emotional triathlon finish—far behind the other athletes—lands her at an entirely different type of medal ceremony.

 
untitled-105.jpg

Chris Wines

Chris Wines is a 19 year-old multi-sport Special Olympian from Hammonton, New Jersey. He has Asperger Syndrome. His high functioning autism is apparent through laser focus on athletic technique, equipment mechanics, and race strategy, that’s at times experienced by teammates as social aloofness. As triathlon teammates and roommates, Chris and Trent form a complex relationship. Their earnest desire to support one another is complicated by the inescapable reality that they will compete head-to-head for a place on the medal podium. 

 
COMP_040520_SLATE.mov.01_20_23_07.Still047.jpg

Pat Diskin

Pat Diskin has coached Special Olympics USA for nearly 50 years—training athletes in a variety of disciplines. As head coach of the U.S. delegation's triathlon team, Pat is nearly inseparable from Trent and his teammates during the three week trip. Her oversight chafes against Trent’s desire for independence, but her dedication to the team is unwavering.

 

Advisory Group

 
Kate20Bove20gold20medal_1553098351209_78253420_ver1.0.jpg

Kate Bove, Advocate & Athlete

Kate Bove is a 32-year-old adult with William’s Syndrome, a congenital condition, that creates both unique gifts and challenges to people with it. Kate grew up in Jericho Vermont and currently lives semi-independently at a co-housing community in Burlington, VT. Kate has worked in schools as a teacher’s helper, public libraries and most recently at the Janet Munt Family Room in Burlington. Kate is and has always been social, caring and deeply interested in the welfare of others, and works as an advocate and spokesperson for people with disabilities.

She has been a part of Special Olympics Vermont for over 20 years competing in a variety of sports and has had the honor to represented Vermont and the USA at the 2003 World Games in Dublin, Ireland, the 2014 USA Games in New Jersey and the 2019 World Games in Abu Dhabi. Kate enjoys spending time at conferences and workshops focused on those with special needs and has been on the board of the national William’s Syndrome Association. She enjoys spending time with people, but especially enjoy the peers and friends she has met through Zeno Mountain Farm in Lincoln, Vermont.

Max+featured+speaker+at+Disability+Policy+Seminar+in+DC+%234.jpg

Max Barrows, GMSA

Max Barrows is Outreach Director for Green Mountain Self-Advocates, a position he has held since 2007. He mentors youth and adults with developmental disabilities to speak up for themselves and become leaders. GMSA is a lead partner of the Self-Advocacy Resource and Technical Assistance Center. Max leads SARTAC’s technical assistance team assisting local and state self-advocacy organizations across the nation. Max connects with people on all levels advocating for true-inclusion of people with developmental disabilities. In his work, he advances the message that when you meet an individual with a disability, presume competence. 

He received a White House Champions of Change award for this work in 2015 and a Champion of Equal Opportunity award from the National Association of Councils on Developmental Disabilities in 2019. Last fall, Max received the Award for Service to the Self Advocacy Movement from the Autistic Self Advocacy Network (ASAN). Max is an accomplished self-advocate from Vermont who served as a board member for Self-Advocates Becoming Empowered from 2008 to 2016.

tatiuana.jpg

Tatiana Lee, RespectAbility

Tatiana Lee is an award-winning actress, international model and Hollywood influencer. She serves as a Hollywood Inclusion Associate at RespectAbility, a nonprofit organization whose mission is to fight stigmas and advance opportunities so people with disabilities can fully participate in all aspects of community. Lee consults on a variety of TV and film projects, conducts training for studios and production companies including NBCUniversal, Netflix and The Walt Disney Company, and assists with RespectAbility’s Lab for Entertainment Professionals with Disabilities. In her spare time, Lee continues to train and grow momentum in her acting and modeling endeavors.

nicole.jpg

Nicole LeBlanc, Self Advocate

Nicole LeBlanc is a Self Advocate Advisor with TASH on the AOD Disability Employment TA Center where she researches material on employment and self advocacy, recruits focus group members, and provides TA to AODI grantees. She is the coordinator of the Person-Centered Advisory and Leadership Group (PAL-Group) for the National Center on Advancing Person-Centered Practices and Systems (NCAPPS). Since 2011, Nicole has consulted for Self-Advocates Becoming Empowered and the Autistic Self-Advocacy Network developing self-advocacy tools and curriculums, presenting webinars and video blogs on the topics of healthcare, what is Autism, presuming competence, self-managed services, voter access and employment of people with disabilities. She worked for 8+ years at Green Mountain Self-Advocates (GMSA) in Montpelier, VT as Advocacy Director supporting her peers with disabilities to feel comfortable talking to their elected officials about what they need.

jessica.jpg

Jessica Salmond, Self Advocate

Jessica Salmond is a self-advocate and a mother of seven children from Rosedale, Maryland She is a member of People on the Go in Maryland. She sits on the Mayor’s Commission Disability and the PAIMI Advisory Council at Maryland’s Disability Law Center, the protection and advocacy office in Maryland. Ms. Salmond is also a member of the Plain Language Advisory Committee at the Association of University Centers on Disability (AUCD)., as well as their Telehealth Advisory Committee there. Ms. Salmond is also an active participant in the Self-Advocacy Resource and Technical Assistance Center (SARTAC).

The new frontiers in Jessica’s advocacy include working to become a peer support specialist. In 2020 Jessica received the Volunteer of the Year award from On Our Own, a statewide behavioral health advocacy organization in Maryland.

Jessica wants to continue to participate in training like the AUCD leadership Academy so she can gain tools, skills and relationships to be a better advocate for herself, her children and other people who have disabilities and psychiatric conditions.

Daniel_rectangle.jpg

Daniel Smrokowski, Special Chronicles

Daniel Smrokowski is an award-winning and veteran podcaster, columnist, and an acclaimed advocate telling disability stories on the groundbreaking platform SpecialChronicles.com. As a digital media creator, he produces podcasts, videos, blogs, columns, and public speaking to give respect and voice to people with special needs. Daniel educates and informs our community that those with different abilities bring unconditional love and joy everyday.

Daniel serves as an Ambassador for ComEd and United Airlines. In addition, Daniel is a Sargent Shriver International Global Messenger with Special Olympics.

Consultant

 
Andrew_headshot.jpg
 

Andrew Pulrang is a freelance writer with lifelong disabilities and 22 years experience as a service provider and executive in nonprofit disability services and advocacy. He writes about disability practices, policy, politics and culture. He also co-coordinates #CripTheVote, a Twitter-based discussion of disability issues and electoral politics.

He has a B.A. in history from Dartmouth College, and an M.A. in Rhetoric and Communication Studies from the University of Virginia.

 

Creative Team

 
IMG_2554.jpg

Ned Castle, Co-Director

Ned Castle is a cultural researcher and videographer with a background in ethnographic filmmaking. Ned works with media in cultural research, educational, and commercial contexts that emphasize collaboration and a deep engagement with the ethics of representation. His approach is influenced by more than a decade working as a researcher and media producer at the Vermont Folklife Center.

IMG_2597.jpg

Matt Day, Co-Director

Matt Day is a director and producer living in Los Angeles. His last short documentary, Shape of Things To Come, was a Vimeo Staff Pick, and went on to win the Special Jury Prize at Napa Valley Film Festival, and Grand Jury Prize at VTIFF. He has produced multiple award winning music videos for the likes of War on Drugs, Chainsmokers, Blink 182 and Noah Cyruss. Matt was a producer on the award winning feature film “Snowy Bing Bongs” featuring Sunita Mani, and directed Season 5 of #Millennials for Audience Network.

MV5BZTFjNDAyMjctMjAwNy00ZjM5LThkZDctMDVjMjk3MWYzZDk2XkEyXkFqcGdeQXVyMjQwMDg0Ng@@._V1_.jpg

Saul MacWilliams, Composer

Saul Simon MacWilliams is an Emmy nominated, Los Angeles based composer for film and television. MacWilliams is a Purchase Conservatory of Music graduate, multi-instrumentalist, orchestrator, songwriter, recording and mix engineer, sound designer and music producer. Some of MacWilliams' feature scoring/co-scoring credits include; HBO's 'Jim : The James Foley Story' (Sundance / Emmy Win) Amazon's 'Gleason' (Sundance Audience Award) HBO's 'Becoming Warren Buffett' Amazon's 'A Suitable Girl' (TriBeCa Win) Netflix's 'Chasing Coral' (Sundance / Emmy Win) HBO's 'King in the Wilderness' (Sundance / Emmy Win) STARZ' 'Out of Omaha' (Doc NYC Win), 'Love, Antosha', (Sundance), 'The Last Out', and 'Anonymous Sister'.